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Céline Dion Update: Singer Has Lost Control of Her Muscles

Céline Dion battles rare stiff-person syndrome, struggles with muscle control and singing.

Céline Dion lost all control of her muscles one year after she announced her stiff-person syndrome diagnosis.

Legendary singer and LGBTQ+ icon Céline Dion first spoke about her diagnosis in December 2022 with a video message shared with her fans. Dion said she has been dealing with health problems for a while, but finally had an update.

“Recently, I’ve been diagnosed with a very rare neurological condition called stiff-person syndrome, which affects something like one in a million people,” she said. stiff-person syndrome is a rare and incurable neurological disease that causes muscle spasms, slurred speech, and unsteady walking.

“Unfortunately, these spasms affect every aspect of my daily life. Sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to.”

Family Announces New Health Update

Dion previously canceled her highly anticipated 2023/2024 world tour with the intent of returning to the stage soon. However, a recent update from her sister Claudette reveals her state has worsened.

“She works hard, but she doesn’t have control of her muscles. What pains me is that she has always been disciplined. She always worked hard. Mom always told her, ‘You’re going to do this well, you’re going to do this well.’

“It’s true that, in our dreams and in hers, the idea is to return to the stage. In what state? I do not know. The vocal cords are muscles, and the heart is also a muscle. This is what gets me. Since it’s a one in a million case, scientists haven’t done that much research, because it didn’t affect that many people.”

Céline Dion Makes First Public Appearance

Last month, the “My Heart Will Go On” singer publicly appeared with her family at a Montreal Canadiens hockey game in Las Vegas.

“My boys and I had such a fun time visiting with the Montreal Canadiens after their hockey game with Vegas Golden Knights in Las Vegas Monday night,” she wrote alongside a photo of her family. “They played so well, what a game!! Thank you for meeting us after the game, guys! That was memorable for all of us. Have a great season!”

The 55-year-old was joined by her sons René-Charles, 22, and 13-year-old twins Eddy and Nelson.

Author

  • Caitlynn McDaniel

    Caitlynn McDaniel is the Director of Communications and Talent Relations at Rainbow Media Co., overseeing PR strategy, talent outreach, and interview programming across LGBTQ+ brands Gayety and Pride. She covers all things entertainment—from buzzy TV drops to red carpet moments—and regularly conducts interviews with film, television, and music talent. A self-proclaimed Disney fanatic and music lover, Caitlynn also hosts a queer-focused podcast spotlighting LGBTQ+ voices in entertainment and culture. Pitches: [email protected]